Rating:
(4 reviews)
Author: Visit Amazon's Julie M. Hauer Page
ISBN : 1421409372
New from $25.86
Format: PDF
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Review
This unique book provides detailed scientific information that is carefully explained in a gentle and thoughtful manner. This book provides a much needed resource for families struggling to stay informed and make decisions for their children. It also is a new and essential resource for pediatric palliative care professionals who walk alongside families as guides.
(Jody Chrastek, DNP, RN, CHPN, Children’s Hospitals and Clinics of Minnesota)
Framing by symptoms, not diseases, Dr. Hauer gives practical diagnostic and therapeutic approaches to the most challenging problems faced by children with severe neurological impairment. Grounded in compassion, experience, and family-centered care, Caring for Children Who Have Severe Neurological Impairment: A Life with Grace is a must-read.
(Rishi Agrawal, MD, MPH, Academic Pediatric Association Complex Care Special Interest Group)
Julie’s compassion for the struggles of families with children who have SNI and her concern for the quality of life of every patient who has SNI comes through. She conquers the complexity of combining all aspects of care—pain, GI, respiratory, spasticity, seizures, medications, end-of-life issues, and more—for patients who have SNI at all levels of involvement. Complex care issues combined with optimal quality of life information makes this a must-read for caregivers of those who have SNI—parents and clinicians alike.
(Dean and Teryn Suhr, MLD Foundation)
The realities of children living with severe neurological impairments is two-fold: a side of difficulties and dark moments, and a side of joy and light. Dr. Julie Hauer attends to both sides in this book, as she has done for every patient and family she has encountered over the years of her career as an esteemed and beloved physician devoted to the care of children with major medical problems.
(From the Foreword by Chris Feudtner, MD, PhD, MPH, The Children’s Hospital of Philadelphia)
Book Description
An expert physician empowers parents to make informed decisions about their child’s care.
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Direct download links available for Free Caring for Children Who Have Severe Neurological Impairment: A Life with Grace (A Johns Hopkins Press Health Book) Paperback
- Age Range: 18 and up
- Series: A Johns Hopkins Press Health Book
- Paperback: 480 pages
- Publisher: Johns Hopkins University Press (June 12, 2013)
- Language: English
- ISBN-10: 1421409372
- ISBN-13: 978-1421409375
- Product Dimensions: 1.2 x 6.3 x 9.2 inches
- Shipping Weight: 1.4 pounds (View shipping rates and policies)
Free Caring for Children Who Have Severe Neurological Impairment: A Life with Grace